The topic “Would I change the Down syndrome if I could?” is a hot topic this week on blogs of children with DS. Perhaps this has something to do with March? It is almost exactly a year ago that I wrote on this topic, which you can read HERE.(And don't skip the comments! There is a whole added further analysis there....)(And Yes, I would….)
But right now I am wishing I could change myself a bit. (At least it wouldn’t need an open miracle to do so.) Why? Because I really lost it last night with Ricki. It was a busy day for me, and when I finally had a chance to sit down with Ricki and do homework, she didn’t cooperate. Not at all. She took forever to eat supper, and an infinity to put her stuff away. Then, to top it off, she started up with some of her “learned helplessness techniques. And I really had neither the time nor the patience to deal with that. So instead of THINKING how best to handle the situation, in the end I simply sat there yelling at her for being an uncooperative pest.....
Oh, I hate those broken mother moments. Don't be too hard on yourself, I think we all have them. And, in my case it might take a miracle to end them.
It is so good to have you to look to for future insights. Thanks for letting me know about the poets. I would love to read any poetry written by someone with Ds. Do you know where I might find some poems?
Being human is such a pain! I wish I could get it right all the time--or even just more!
TUC, We have a Hebrew poet here with Down s. I have heard of some in English, but don't know where to tell you to look......
There is one piece on page 40 (a ditty of sorts, but nice...) of Adventures in the Mainstream (by Greg Palmer, out-of-print but very worth reading....)
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