This is a bit late, but I anyway want to post something for “down syndrome Awareness Day”, March 21st, (3-21: 3 copies of the 21st chromosome)
The debate over “would I change her if I could” has not left my mind. While this ride through “Holland” has enriched my life in numerous ways, and while I value those with Down syndrome, I am still puzzxled by those who would not change the condition if they could. Many write that “Down syndrome is what she is….”
WHAT was THAT?!!?
My daughter is affected by Down syndrome. Very much so.
But I can NEVER imagine saying that Down syndrome is “what she is”!
Ricki is a pest.
Ricki is funny.
Ricki can be damn right smart when she wants to be.
Ricki is a natural at dancing and movement.
Ricki loves good food.
Ricki enjoys people.
Ricki hates hard work.
Ricki can meet a challenge and tackle it.
Ricki thinks her mom is dumb (judging by how she tries to get away with hiding stuff behind her back.)
Ricki is many many things. But much much more than “Down syndrome”.
(PS. I am not meaning to attack whoever wrote like this. But as a mother of an older daughter, it is so clear to me that my daughter's personality overshadows her Down syndrome.)