Dave Hingsburger at his blog
Rolling Around in My Mind, has advocated making January 23rd a day " to commemorate the lives lived by people with disabilities
who were locked away, who ARE locked away from full participation in society.
It was also established to remember those, our elders, who have worked
tirelessly for inclusion and access, for the word 'all' to actually mean 'all'."
His story as to why he chose
this date, posted last year, is also telling:
"I
have always, for example, marked January 23rd in my calendar as a day to
remember. Let me tell you why. Sandra Jensen was a woman with Down syndrome who
was denied a heart transplant because of her disability. It seems that people
thought that a perfectly good heart should go to a perfectly good person - and
though Sandra lived a life of quality and contribution, she was not considered.
In fact, a transplant had never been given to someone with an intellectual
disability. They didn't know who they were dealing with.
Sandra
was an advocate and she began. She fought against prejudice. She fought against
stereotype. She fought against hatred. Her message was one of hope and power.
She wanted her life to be valued. She wanted everyone to know that she loved
living and the she rejected any notion of 'better off dead'. She stood for all
people with disabilities. She stood for all to be valued. She fought and she
fought hard. And she won. On January 23rd, 1996, she got her heart."
I am
planning on writing a special post for that day. And please spread the word.
Because the battle for full acceptance of those with disabilities is far from
over.
2 comments:
I hadn't heard about Sandra Jensen before. What an amazing woman. January 23rd, hmmm.
I have a vague memory of the case.
l'ilui nishmata shel Rena
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